I have had M.E for ten years at least and during that time I have had varying degrees of health from being in bed for most of the time to being almost well. The unpredictability of M.E. is the hardest thing to deal with. At present I have the dilemma of knowing whether to go back to work or not. I am a teaching assistant and only work three mornings a week (down from 5 due to a previous relapse). I have been off work since the summer and this week went back. I coped alright at school and enjoyed getting out of the house, socialising and doing a worthwhile job that I love. However I don't know whether I can or should keep it up as, when not at school, I am no good for doing anything beyond the necessities of making a meal etc. Also I have to get a sick note a week in advance so have to predict how i will be the following week which with M.E. is impossible. However, if I give up work then I will lose all those benefits that work brings and during my good times will feel guilty and bored. I doubt there is really an answer to this but just would be interested in any comments or other people's experiences.
